Welcome to THROUGH OUR EYES. We’re proud to be the first and only global charity dedicated to supporting individuals and families affected by three rare eyelid conditions: Blepharofimosis Ptosis Epicanthus Inversus Syndrome (BPES), Ptosis, and Marcus Gunn Jaw Winking Syndrome (MGJWS). Registered with the UK Charity Commission (No. 1211355), we’re based in the UK and Malaga, but our mission reaches families all over the world.
LIFE WITH EYES WIDE OPEN
ABOUT US
Welcome to Our Community
From Vanessa and Miguel, parents to Emilio
Our son Emilio was born on July 6, 2023, with Blepharophimosis Ptosis Epicanthus Inversus Syndrome (BPES)—a rare genetic condition, and the first known case in either of our families.
Emilio’s case was severe. Left untreated, it could have led to poor vision, impaired posture, social anxiety, low confidence, and even bullying. As new parents, we were determined to give him the best chance at a confident, healthy life. After much searching, we found a skilled surgeon who helped open Emilio’s eyes—changing his life forever.
But what shocked us most was how little advice, support, or reliable information was available to guide us. We felt isolated, overwhelmed, and desperate for answers.
We’re here to change that.
We’ve created this space to be a voice and a resource for families like ours. Whether you or your child has BPES, Ptosis, or Marcus Gunn Jaw-Winking Syndrome (MGJWS), you’re not alone.
Our mission is to:
Build a supportive community
Raise awareness of these rare conditions
Share trusted information and resources
Raise funds to help children and adults access the highest quality surgical care—regardless of where they live or what they can afford
If you’ve found your way here, welcome. We hope you find comfort, answers, and support in this space.
With love,
Vanessa, Miguel & Emilio
What We Do
01.
— We Find & Fund
We find remarkable individuals and corporations who want to help, and we raise money for more babies, children and adults to have the best surgery available to save their vision and improve their lives.
02.
— We Build Networks
We connect unrepresented individuals with BPES, Ptosis and MGJWS through events and global gatherings to help people find a safe space and others who understand them.
03.
— We Strengthen
We help children and adults who have suffered bullying and have had their confidence negatively affected by living with these conditions by connecting them to professionals that can help them rebuild their lives.
04.
— We Educate
We speak to doctors and pediatricians around the world who are not aware of these conditions and educate them so they can better advise their patients.
05.
— We Provide Care
We provide advice, support and resources for families discovering these conditions so that they get the best and most suitable help for their child.
06.
— We Spread Awareness
We organise regular events to raise awareness as we work towards our goal of 1 million people learning about these conditions through our work.
Impact Stories
We had never heard of Blepharofimosis before our son was diagnosed at 6 weeks old
Emilio is my first and only child, and he didn’t open his eyes for the first 6 weeks. We were very worried, but our local pediatrician didn’t know what was wrong with him.
A Brighter Future — For Our Children
We saw 6 different pediatrician and oftalmology specialists in the UK who each gave us different and incomplete information before discovering the best surgery available for our little girl.
Partners
